Routine
The start of the third week of proton. Everyone is starting to settle into the new routine now and adjusting to life in Germany. Zac is getting physically stronger now and his appetite is picking up. He is still very fussy around food, and we are still topping up his calories with the tube feed overnight, but there are definite signs of improvement. On the days of his treatment, he must be nil by mouth 6 hours before the general anaesthetic, meaning one of us is tasked with stopping the feed and detaching the wire around 2/3am. He is also starting to play for short periods on his own now, previously he would have needed me or Seb to be with him the whole time. I suppose he had become used to this during the time at the RVI and understandable he would crave more one on one attention during the time, nevertheless, getting moments of independent play certainly made our lives a little easier.