About us

ETMR Aid was founded by Seb and Camille Pearey. Our son, Zachary, was diagnosed with ETMR in December 2021. At the time of writing, Zac recently had a clear MRI 6 months post-treatment and is recovering well. We hope to use our experience to help and support others enduring the same battle.

Core Values

These core values are behind all that we do at ETMR Aid:

Compassion

Supporting and caring for those affected by ETMR.

Integrity

Guided by truth, ethics and science.

Courage

Facing challenges head on, bold in action.

Our Pledge

We wanted this to be a charity in the purest sense of the word. As such, all costs associated with running the business will be covered by the founders. All work on the charity will be carried out on a purely voluntary basis. This means that all funds raised will go directly where they are needed.