Reflections

Writing this blog has helped me reflect on, and process, all that has happened over the past year.  If anyone reading has found it helpful in any way; whether to better understand what happens following a child’s cancer diagnosis, or finding some solace if you have been through something similar, then that is a bonus.

So, where are we now?  I can say that, at this moment in time, Zac is doing incredibly well.  There has been a big improvement in his behaviour 6 months on from finishing treatment.  He celebrated his 4th birthday in November with a big party full of family and friends; a milestone we didn’t know whether he would reach at the start of the year.  His most recent scan, just a couple of weeks ago, was also all clear; incredible.

Looking forward, he will have scans every 3 months over the next year, moving to scans every 6 months after 2 years.  He will continue to take epilepsy medication to keep any seizures at bay; at this time, it’s uncertain how long he will need to take it for as he may develop epilepsy as a result of the radiotherapy to his brain.  We will have to wait and see what other side effects develop over the next year, but for now we couldn’t be happier with how he is doing and being able to make the most of spending time together, making memories.

I will continue adding to this blog and would be happy to offer any support to families going through something similar, so feel free to reach out.  And finally a huge thank you to all the doctors, nurses, cleaners and HCAs at the RVI and the WPE; as well as all our family, friends and strangers who supported our family throughout Zac’s treatment; you really have been life savers.