Accepted for Proton Beam

We get to spend a couple of days at home before Zac is readmitted on Sunday to start the high dose chemo.  He’s eating a few little bits but is mainly reliant on the tube feed for his nutrition and calories.  He gets to see his grandparents and we take the chance for a little park trip.  We push Zac in the pram as he is still very weak, but he does manage a few steps in the park and he enjoys sitting to feed the ducks.  We feel incredibly lucky to be able to share some ‘normal’ family experiences together again once again, even a once considered ‘mundane’ park trip.  Although seeing him at the park, unable to walk, where previously he would run, climb and jump does bring home what an abnormal situation we are in.

In the afternoon, we receive a phone call from Gail to inform us that Zac has been accepted for Proton Beam radiotherapy, with a slight curve ball being that it will be undertaken in Germany.  ETMR tumours have a better prognosis if radiotherapy is undertaken soon after the surgery, so hearing that Zac will be able to begin this treatment as soon as his high dose chemo has finished is fantastic news.