Bye bye safety net

Zac spends the night at the hospital with Seb and is discharged the following day.  It is great to see him reunited with his brother, and to have everyone home together.  It is also the start of a steep learning curve for us, without the safety net of the hospital staff, and being responsible for administering copious amounts of medication throughout the day.  Having Sue and Keith there to help with Joseph and running the house is a huge help as the transition from hospital to home life has been quite overwhelming.  On one night, I forget to give Zac his night-time dose of anti-sickness medication and he wakes during the night to vomit all over his bed.  Seb and I argue about putting together a new tube feed and in between that, cleaning Zac and changing the bed sheets I accidentally give double the dose of medication.  Cue a frantic phone call to the RVI at 4am, where a very understanding ward nurse reassures me it’ll be fine.  Just an example of how lack of sleep, heightened emotions and trying to adapt to a new environment and routine was so challenging in those early days.